5
Mar

Manipur journalist gets it wrong

In this Indian article it is written that Myanmar is "one of the worst HIV-infected countries of the world". This is untrue. Must Indian journalists see a 'foreign hand' everywhere?

The second article blames poor roads for challenges in care.

There is something to be learned from Manipuri problems.

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A Tribune Exclusive
Myanmar to Manipur, a scramble for HIV care
By Usha Rai

The Angel’s Care Centre at Moreh, 110 km from Imphal, Manipur, and on the border with Myanmar, one of the worst HIV-infected countries of the world, has to provide medical help not just to the over 400 People Living with HIV and AIDS (PLHA) in Moreh but to the infected of Myanmar who cross the border desperate for medical help.

The fact that Moreh is close to the Golden Triangle (Myanmar, Laos and Thailand) of the drug route, and within sniffing distance from India’s National Highway 39, has compounded the problem. Forty per cent of the Manipuri families inject drugs and there are 33,403 HIV positive in Manipur.

In fact, Manipur is one of the six HIV high prevalence states of the country with 1.13 per cent of the people infected. But in Manipur, as in the adjoining Nagaland, it is a deadly combination of alcohol and drugs in the form of tablets that the young turn to for their ‘high.’ When this fails to satisfy them, they have no qualms about injecting heroin no 4 and other drug opiates. Since a dose of heroin costs just Rs 20 in Moreh as against Rs 100 and more in Imphal, young people in this small border town resort to it when angry, depressed and even when happy and in need of celebration.

Though India is the medical destination for a range of ailments -- heart surgery to kidney transplants and corneal replacement, the treatment of HIV-infected from across the border is almost a clandestine operation. In a state like Manipur where adequate facilities are not available for treatment of the local HIV-infected population, many feel it is difficult to justify treatment of foreigners, however poor they are, coming from a country that has not been able to provide medical succour to its people.

Sachin, project coordinator of the Angel Care Centre, and Sumati, secretary of the NGO Meetei Leimarol Sinnai Sang (MLSS), Imphal, however, feel frustrated about their inability to help the very young and very sick people from across the border. Some are 20 years or even younger and others 40. They come with acute skin infection, TB and other ailments. At any given time, there are 60 to 70 patients from Myanmar and Sachin says they are HIV positive.

Many of them are farmers and daily wage labourers who buy the ART (antiretroviral therapy) medicines from pharmacies in Myanmar. They do not have reports on their CD-4 count or level of immunity because they have no access to these facilities in their own country.

Without a CD-4 count report, they cannot be given ART in Moreh. So they are treated for subsidiary ailments and sent home. Since MLSS runs a DOTS Centre in Imphal and there is high prevalence of HIV among the TB-infected, the people from Myanmar are able to access the TB medicines from Manipur. They cross the border regularly for the treatment but since they speak only Burmese, there are problems of communication.

While hospitals in Morey and even those in Imphal are in a dilemma about treating PLHA from across the border, Dr Priyo Kumar of JN Hospital, Manipur, says since the country lies on India’s border, treating patients from Myanmar is quite ethical. Besides it also helps protect Manipur’s population from the infected from across the border.

With the present support from the Global Fund for AIDS, Tuberculosis and Malaria coming to an end this March, Sachin and Sumati are worried about the future of the Angel Care Centre which has become the lifeline for over 200 PLHA. It has a 10-bedded community care centre and is providing antiretroviral therapy to 55 persons from Moreh-21 men, 32 women and two children. The ART Link Centre was set up only in November 2009. If instead of upgrading the Angel Care Centre, it has to close down, there will be a vacuum in the care and support of PLHA. They will have to travel 110 km to Imphal for treatment, says Sumati.

In Manipur, the combination of HIV with Hepatitis B and Hepatitis C is playing havoc in the lives of those infected. This phenomenon has not been seen in other parts of the country. However at the JN Hospital, one of the top hospitals for treatment of HIV, the increased risk to the life of an HIV-infected from Hepatitis B is given special attention. Hopefully other hospitals and caregivers will realise the gravity of HIV with Hepatitis and give it due importance.

There has been a small decline in injecting drug users in Manipur and now the HIV-infected are joining the network of positive people. They have gained confidence and some have even become peer educators.

Take the case of Hanglem Bimola, 40, a widow on ART, now working with MLSS as a peer educator. A graduate from Bishnupur district of Manipur, Bimola married in 1996 an injecting drug user in Imphal not knowing his HIV status and had a baby girl the following year. When she was pregnant again, her husband died. The child born in 1999 too died after three months.

Then the discrimination by her in-laws began. They would not eat food cooked by her and she had to stay in a separate room. She then went to her parents’ house and in 2001 fell ill and was diagnosed as HIV positive.

She tried to support herself and her child by selling vegetables but no one would buy her vegetables because of her HIV status. So she moved to Imphal. Bimola recalls that after she bathed in a public pond at Utlou village, people of the village held a public meeting and disinfected the pond because they feared the water was contaminated.

Then she got in touch with the NGO MLSS and soon graduated to becoming a peer educator. Now she works with the Bishnupur Network of Positive People in an Access to Care and Treatment project.

In the case of Romeo S Misao, 37, he took to drugs to gain popularity among his peers. He was only 17 then and soon got addicted to it. When his parents found out and stopped giving him money, he started stealing and selling off things at home — he even sold his blood — to be able to buy heroin. In 1994 when he fell sick he was diagnosed HIV positive.

When Misao disclosed his status, his friends began distancing themselves from him. He took to alcohol to get over the depression. After coming out of a rehab clinic, he learnt through some articles in magazines that there was life beyond HIV. He then went for psychological help. Tested for Hepatitis C/HIV, he was found positive and put on medication. Misao has joined the Network of Positive People at Senapati and his life has changed for the better.

Dr Priyo Kumar feels creating awareness and getting people to access services is the biggest challenge of the state, especially in areas that are hard to reach. The first case of HIV was seen in Manipur in 1989-90. Thereafter for a few years, many people suffered on account of common Opportunistic Infections, which could not be detected and some even led to death. Complications like cryptomeningitis, penicilliosis and toxoplasma were common.

Doctors could not diagnose cryptococcal meningitis and injection amphotericin-B was not available in Manipur. The cost of medicines was prohibitive and some HIV-infected had to spend Rs 5,000 per 100 tablets of zidovudine (retrovir).

With the introduction of HAART (highly active antiretroviral therapy) in 1996, HIV became like any other chronic manageable disease like diabetes, hypertension or arthritis but treatment was still beyond the reach of
the common man. Many people ended up with incomplete regimens complicating their health profile further. Side effects were also reported.

But challenges continue to persist in Manipur. Of the six ART centres, only two are providing good service. There is a dearth of sound health professionals. In 2000, identification of HIV was still a problem especially among wives and partners of sex workers who remained unaware of their status. Also spread of the infection from mother to child continued to be a serious issue and inadequate medical infrastructure led to situations where opportunistic infections were often undiagnosed and follow-up was inadequate.

http://www.tribuneindia.com/2010/20100301/main7.htm

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Poor, inaccessible roads hinder fight against AIDS

Dimapur | February 28 : Poor road connectivity is emerging a major stumbling block in providing proper healthcare services to People Living with HIV in Nagaland. The state has invested heavily in the fight against AIDS, but bad roads and poor infrastructure is hindering the progress of service providers as well as PLHIVs across the state. The problem is grave especially for those living in the rural and remote areas.
The districts of Mon, Tuensang and Kiphire have the distinction of being most effected due to poor road connectivity. It is reported that villages in the Tobu area of Mon district, PLHIVs travel 200 kilometers to Mon town just for blood tests. Though the distance is shorter, roads to Tobu town from these villages are inaccessible. The picture is grim as Tobu block remains one of the most neglected places in the district. People from Tobu town itself find it easier to access facilities from Tuensang rather than Mon town, as the road connectivity from Tobu to Mon remains cut most parts of the year.
An appalling sight of just how road conditions in the state are, many PLHIVs in Noklak area of Tuensang district have stopped taking treatment as it proves costly for them. “Since the road is bad, Sumo fares are very high…many people cannot afford it and have stopped coming for treatment,” an AIDS worker says. The situation is worse in Thonoknyu area where even outreach workers find it difficult to penetrate. Villages along the Myanmar border remain cut off from the rest of the district, preventing PLHIVs from accessing proper and timely treatments. Service providers cannot reach out to patients as desired.
Close to Kohima, Phek district still faces similar problems of bad roads leading to numerous complications for service providers as well as PLHIVs. Phek does not have an Antiretroviral Treatment Centre and depends on Kohima centre for medicines, which makes it difficult for people to access treatment. The situation is far worse in Meluri sub-division where bad roads are reported to be a major hindrance to accessing proper AIDS healthcare facilities.
Mobile healthcare vans do not reach major parts of the state due to bad and inaccessible roads.  One of the most arguable factors noted is that the AIDS fight would be more successful if the state has good roads. It is reported by NGOs that 80% of PLHIVs are from underprivileged backgrounds and poor road connectivity only make things harder for them.
“We have to create a situation which is affordable for them…most roads here are not even pliable,” a Tuensang based AIDS worker says. Most PLHIVs living in remote areas are living under the shadow of bad governance. Part time development schemes for road constructions have not helped improve the situation either.
There is a common consensus that services for PLHIVS cannot improve unless the road conditions improve. AIDS workers feel the time has come to move beyond prevention programmes and concentrate on containing the virus. They feel that departments which can improve the quality of life for PLHIVs must be roped in the fight against AIDS.

http://www.morungexpress.com/frontpage/44315.html

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