Mizzima News, Global Voices, and SEA-AIDS are picking up part of the conversation on the registration, naming, and supervision issue.
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http://www.mizzima.com/news/inside-burma/2754-hivaids-voluntary-groups-to-register-with-health-ministry.html
http://globalvoicesonline.org/2009/09/10/myanmar-new-policy-requires-hiv-groups-to-register/
http://www.healthdev.org/viewmsg.aspx?msgid=1fbe6691-ee46-4f47-a081-280765182330
HIV/AIDS voluntary groups to register with health ministry
Nem Davies
Mizzima News
September 11
New Delhi ? The Burmese Ministry of Health has directed a network of
voluntary groups, which are providing assistance to people living with
HIV/AIDS, to register with the ministry.
The National Health Programme (NHP) under the Ministry of Health earlier
this month issued a directive ordering the networks working for people
living with HIV not to function in their own names but to register under
Sexually Transmitted Diseases and HIV prevention unit of the Ministry of
Health.
?They don?t want to see these networks working in their own names,? an
official of an INGO working for HIV/AIDS told Mizzima.
The directive states that if the groups want to function on their own,
they must apply for registration through various stages such as Township,
District and finally at the Home Ministry in keeping with the law.
?It?s almost impossible. We won?t be allowed to register even if we apply
for it. This is the usual phenomenon in Burma,? the official said.
?The directive does not say anything on action to be taken for
non-registration. So we are continuing our work as usual,? another
official of an INGO, who received the directive issued by NHP from
Naypyitaw, said.
The networks namely ?Mee Ein Shin?, ?Tet Myanmar? and Padomma, are
basically formed with people living with HIV and these people are
personally involved in providing assistance to other people living with
HIV across the country.
?Peer-to-Peer relationship is achieving more understanding among us. We
can give them more care and sympathy. We can encourage our fellow people
who live with HIV,? an official at the ?Myanmar Positive Group? (MPG), who
is also living with HIV, told Mizzima.
These networks had started work in 2004 and have gradually expanded with
over 100 members involved in voluntary works.
An official of the UK-based international HIV/AIDS alliance group, which
is providing technical and financial assistance to these small networks,
said, ?These networks are formed to encourage each other to enjoy social
freedom as other ordinary people and to resist social ostracism. This is
their main objective.?
These networks help people living with HIV to receive Anti-retroviral
(ARV) drugs by connecting them with groups that are providing medical
assistance, and serving as attendants in hospitals and distributing
pamphlets.
According to the announcement made by French NGO Medicines Sans Frontier
(MSF) on 25 November 2008, there are about 240,000 people living with
HIV/AIDS in Burma and over 75,000 of them are in urgent need of ARV.
But the actual availability of this essential drug is less than 20 per
cent of the total needy patients, the announcement said.
They have to give substitute drugs for ARV, the antibiotic Septrin
instead, an official, who is working in the field in central Burma for the
UK-based International HIV/AIDS assistance organization told Mizzima.
?Our organization can give ARV drugs to only 120 patients in the whole
country. The rest of them can be given only substitute drugs, Septrin,
just to contain the disease. It is less effective,? he added.
The organization has been providing essential drugs to only a limited
number of people with HIV/AIDS in central Burma region of Mandalay, Bagan,
Poppa, Yenanchaung, Myingyan, Sagaing and Monywa.
But sources said, a majority of the people with HIV still lack the drugs
and urgently need it.
?The government gives assistance on a small scale. They can give it to
only 50 people in Magwe. The requirement is much more than that,? another
official of an international aid group said.
The ?Global Fund?, the main provider of assistance in the fight against
TB, Malaria and HIV/AIDS, suspended its assistance to Burma in August
2005, after citing government restrictions on the group?s volunteers.
After the junta restricted the movements of humanitarian assistance
workers in Burma and the suspension by the Global Fund, the fund for
fighting the three diseases have been given in the name of ?Three Diseases
Fund ? 3 D Fund? since 2006.
Australia, the European Commission, Netherlands, Norway, Sweden and
Britain under the 3D funds provided USD 100 million to fight against these diseases until 2011.
http://www.mizzima.com/news/inside-burma/2754-hivaids-voluntary-groups-to-register-with-health-ministry.html
